The Group is registered in the Royal Court of Jersey and has as its patron The Earl of Jersey.
Haemophilia is an inherited blood disorder affecting the ability of the blood to clot. This in turn leads to problems of joint mobility and other health problems.
In addition to providing financial and general support to local sufferers and their families, the Group has over the years donated specialist equipment to the General Hospital and supported the Katherine Dormandy Trust for research into Haemophilia and allied blood disorders, at the Royal Free Hospital in London.
We raise our funds by donations, sponsored activities and a monthly “100 Club” supported by friends and family of sufferers in Jersey.
We are pleased to hear from non-members who may be sufferers, carers or require further information about our activities or need assistance.
The range of bleeding conditions that are managed in Jersey include:
Haemophilia A (Factor 8 deficiency)
Haemophilia B (Factor 9 deficiency) - also termed Christmas Disease
Factor 7 deficiency
Factor 11 deficiency
Inherited Von Willebrand's Disease (VWD)
Acquired (auto-immune mediated) Von Willebrand's Disease
Platelet Storage Pool Disorder ("Lazy Platelets")
Gray Platelet Syndrome
Bernard Soulier Platelet Disorder
Other website addresses that may be of interest are:
www.factorfitness.co.uk for children and factorfitness.co.uk/fact for adults.
www.questival.co.uk is for teenagers and contains information on alcohol, drugs and other sensitive topics