Registered Jersey Charity No. 302 · Founded 1973
We support people living with bleeding disorders and their families across Jersey — providing financial help, emotional support, and community.
Join our communityWho we are
Patron: The Earl of Jersey
Chairperson: Norma Toudic
Who we are
You have haemophilia if your blood does not have enough clotting factor. It affects men and women differently, but we're here for everyone.
Affects around 80% of haemophilia patients. It's caused by a lack of clotting factor VIII.
Most common typeAlso known as Christmas Disease, this affects around 20% of patients and involves a lack of clotting factor IX.
Christmas diseaseMost patients are men. Women carry and pass on the haemophilia gene — and some live with symptoms for years without a diagnosis.
Carriers & patientsKnow the signs
Your child may experience some or all of the following symptoms. Recognising the type of bleed quickly makes a real difference.
Head bleeds are a medical emergency. Call 999 or go to A&E right away.
Early treatment of joint bleeds can prevent long-term joint damage. Contact your haematologist.
Living well
A diagnosis brings many questions. We offer practical guidance, emotional support, and a community who understands.
Common questions
Yes — staying active is encouraged! We can advise on which sports are safer and how to participate with the right precautions in place.
Generally, individuals with inherited bleeding disorders are advised not to donate blood. Speak to your haematologist for personal guidance.
This carries a high risk of bleeding and should be discussed thoroughly with your haematologist before going ahead.
We can provide information on local Jersey health policies and potential eligibility for free prescriptions.
How the JHG can help
We advise on living a full, active life with a bleeding disorder — including exercise guidance tailored to your condition.
Planning a business trip or family holiday? We can help with the right precautions and guidance to travel safely and confidently.
If you're feeling anxious, angry, or low — living with a blood disorder places real demands on you. The JHG is here to listen, without judgement.
Transparency
As a registered Jersey charity, we publish our financial accounts each year.
Get in touch
Get in touch with the JHG — we're here to help Jersey families living with bleeding disorders.
Resources
Useful websites for the bleeding disorders community.
Our committee
The JHG is run entirely by volunteers from within the Jersey haemophilia community.